CEO - Citizens United for Research in Epilepsy

LOCATION: Chicago, IL (US)

CLOSING DATE: November 23, 2018


JOB #: 13197

POSTED: October 23, 2018


Citizens United for Research in Epilepsy (CURE), the leading nongovernmental agency committed to finding a cure for epilepsy through the funding of long-range, cutting edge research, seeks nominations and applications for its next Chief Executive Officer. Poised to build upon a 20-year legacy of dedicated research funding and strong and continuing partnerships, CURE seeks a CEO who will elevate its reach nationally and internationally to ensure research toward a cure remains an international priority and the advancement of that research transforms and saves millions of lives.


CURE has raised more than $60 million toward epilepsy research since its inception in 1998, placing the organization on the front lines of new knowledge in the treatment of epilepsy. Translating its fundraising into action, CURE has awarded over  220 cutting-edge projects in 15 countries around the world and consistently commits more than  88% of its expenditures directly to its mission, a track record that results in gold-star ratings in nonprofit evaluative tools like Charity Navigator.  This smart and effective investment in science has consistently brought new attention and talent to the field. The epilepsy research community is strong and poised to make true strides towards eliminating seizures and their consequences, but more is needed.  One in 26 people will develop epilepsy in their lifetime and the greatest burden of impact is on children. Yet, while epilepsy affects more people than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s combined, it receives fewer federal dollars per patient than each of these. Through collaborative evaluation and expansion of CURE’s Signature Programs, strategic identification and implementation of new mission-consistent initiatives, alignment of field resources and programs, and elevation of CURE’s brand to increase its community of supporters and strategic partnerships, the next CEO at CURE is positioned to advance work that will affect millions of lives for the better.


The new CEO will be a compassionate leader who is deeply committed to working with families affected by epilepsy, who understands their stories and lived experiences and has the ability to reflect this in CURE’s fundraising and strategic priorities. With an intuitive understanding of the nuances that exist within this community, s/he will promote a vision for the sector that elevates the profile of the disease and critical research associated with it. The CEO will work collaboratively with the board, staff, and community stakeholders to develop and execute an organizational development and fundraising strategy for CURE and will flawlessly steward funding relationships. Joining a small and highly dedicated team committed to finding a cure for epilepsy, and in partnership with the Chief Scientific Officer, the CEO will leverage CURE’s leadership in innovative research and position to build strategic partnerships across a wide range of non-profit, governmental, advocacy and industry forums. Internally, s/he will have operational, financial and staff oversight, promoting a culture of collaboration and effectiveness and ensuring the team is continually moved by the work.


The successful candidate will be an inspiring, compassionate, strategic, and emotionally intelligent leader who is committed to the advancement of epilepsy research.  S/he/they will have proven and successful experience fundraising combined with the ability to manage and mentor a results-oriented team that holds the work of the organization to the highest standards.  S/he/they will be committed to the field of epilepsy as a whole, will inspire alignment of resources and relationships as the leading public representative of CURE, and will honor and engage communities personally affected by the disease in the ardent fight for its eradication. 




More information about the CURE may be found at:

Due to the pace of this search, candidates are strongly encouraged to apply as soon as possible. Applications including a cover letter describing your interest and qualifications, your resume (in Word format), and where you learned of the position should be sent to: In order to expedite the internal sorting and reviewing process, please type your name (Last, First) as the only contents in the subject line of your e-mail.


CURE is an equal opportunity employer and proudly values diversity.
Candidates of all backgrounds are encouraged to apply.